Until recently, Canada has relied on data from a number of American and Canadian data resources to guide Canadian research, raise awareness, secure government funding and provide support programs — data that is incomplete.
In May, the Brain Tumour Registry of Canada will launch, providing the first Canadian report including both malignant and non-malignant brain tumours.
“After losing our beautiful six-year-old daughter in 2015 to DIPG, the most aggressive brain cancer, we vowed to do whatever we could to help other families affected by brain tumours. We have organised events to fundraise for this Registry in the hopes that the information it contains will provide the details necessary for research. My vision for the future is a day where a parent receiving a DIPG diagnosis for their child hears, ‘Your child has DIPG but don’t worry. We can treat it and we can cure it. Let’s get started.’” — Angelina Simmons